End of Life Resources

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Welcome to the End-of-Life Resources page; a library of information meant to assist physicians, caregivers, and patients find the information they need to better carry out end-of-life care.  Can't find what you're looking for?  Check back in soon becuse we are adding resources daily to continue populating the end-of-life resource categories. 

You may use the categories below to browse topics and resources or use the "Search EOLR" function on the left sidebar. 

When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families

Synopsis: 

 "We are in need of medicine with a heart. . . . The endless physical, emotional, and financial burdens that a family carries when their child dies . . . makes you totally incapable of dealing with incompetence and insensitivity."
 
The full text of this book is free online via the link below.  The writing is very personal and heartfelt and the book is broken into several important themes:  patterns in pediatric palliative care, communication, ethics and legal issues, financing pediatric palliative care and more.   This book has a strong voice for what family and patient centered medicine should be. 

Source: 
Institute of Medicine of the National Academies
Vol/Page/Date: 
2003
Resource Type: 
Book
Author/Source: 
Marilyn J. Field and Richard E. Behrman, Editors
keywords: 
pediatric palliative care, financing, ethics, communication
Submitter: 
Peters