End of Life Resources

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Welcome to the End-of-Life Resources page; a library of information meant to assist physicians, caregivers, and patients find the information they need to better carry out end-of-life care.  Can't find what you're looking for?  Check back in soon becuse we are adding resources daily to continue populating the end-of-life resource categories. 

You may use the categories below to browse topics and resources or use the "Search EOLR" function on the left sidebar. 

When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families Institute of Medicine of the National Academies
 "We are in need of medicine with a heart. . . . The endless physical, emotional, and financial burdens that a...
Adolescents with life-threatening illnesses The American Journal of Hospice and Palliative Care
Abstract:  Adolescents have unique physical and psychosocial needs. Adolescents want to gain autonomy, yet they must...
Audio Podcast: End-of-Life Care For Children: Adding Life to a Child's Time
This is an audio podcast from Hospice Palliative Care Insights, a monthly palliative care podcast based in Canada.  In...
Audio Podcast: Spiritual and Religious Care of the Hospice Palliative Care Client.
This is an audio podcast from Hospice Palliative Care Insights, a monthly palliative care podcast based in Canada.  In...
Candles in the Snow: Ritual and Memory for Siblings of Infants Who Died in the Intensive Care Nursery The Journal of Pediatrics
Abstract:  The objective of this study is to assess the developmental impact of surviving a sibling who dies in the...
Children's Hospice and Palliative Care Coalition
The Children's Hospice and Palliative Care Coalition is a California based organization that has a great model for...
Family Support in Pediatric Palliative Care: How Are Families Impacted by their Children's Illnesses? Journal of Palliative Medicine
This is an interersting article on the impact illness has on a pediatric patient's family.  The article explores both...
Parental Views on Withdrawing Life-Sustaining Therapies in Critically Ill Children Archives of Pediatrics & Adolescent Medicine
Objective: To broaden existing knowledge of pediatric end-of-life decision making by exploring factors described by parents...
Pediatric Residents’ and Fellows’ Perspectives on Palliative Care Education Journal of Palliative Medicine
Objective:  The goals of the this study are to determine the extent of training, knowledge, experience, comfort and...
StoryCorps Audio Podcast: Dr. John Bancroft, a pediatrician, tells his daughter Carolyn about a memorable patient.
In this audio podcast from StoryCorps, a father recounts to his daughter one of his most memorable days as a Doctor when a...
Television Special with Katie Couric: When Families Grieve
 This link is to a great television special that aired April 14th, 2010 on PBS.  The special is hosted by Katie...
The Chaplain's Role in Pediatric Palliative Care: Mapping Model Programs Website
This research project is being conducted by The Hastings Center in collaboration with the department of Religion, Health and...
Until the last breath: exploring the concept of hope for parents and health care professionals during a child's serious illness Archives of Pediatrics & Adolescent Medicine.
Participants in this study were asked standardized questions related to their definition of hope, its role in medical...