End of Life Resources

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Welcome to the End-of-Life Resources page; a library of information meant to assist physicians, caregivers, and patients find the information they need to better carry out end-of-life care.  Can't find what you're looking for?  Check back in soon becuse we are adding resources daily to continue populating the end-of-life resource categories. 

You may use the categories below to browse topics and resources or use the "Search EOLR" function on the left sidebar. 

When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families Institute of Medicine of the National Academies
 "We are in need of medicine with a heart. . . . The endless physical, emotional, and financial burdens that a...
American Pain Society: Pediatric Chronic Pain
The link below connects to a position statement from the American Pain Society on Pediatric Chronic Pain.  It speaks on...
An evaluation of two decision-making scales for children with life-limiting illnesses. Palliative Medicine
Abstract:  Annually, about 500,000 children are coping with life-limiting illnesses. Many of these children could...
Children's Hospice and Palliative Care Coalition
The Children's Hospice and Palliative Care Coalition is a California based organization that has a great model for...
Integrative Approaches to Childhood Constipation and Encopresis Pediatric Clinics of North America
Dr. Culbert is medical director of the integrative medicine program at Children's Hospital and Clinics in Minnesota. ...
Kids Health
Kids health has doctor approved health information about children from before birth through adolescents.  There are...
Level of Activity in Children Undergoing Cancer Treatment Pediatric Blood and Cancer
Abstract:  The diagnosis of cancer bears severe implications for pediatric patients. One immense restriction consists...
Radical palliative surgery: new limits to pursue Pediatric Surgery International
This article provides a detailed case study of a 13 year old girl with a massive desmoid tumor.  She has definitive...